To get involved in any of these opportunities or to find out more please contact Andrea Partridge, Service User Involvement Lead via one of the following methods:
Neuro-Oncology Integrated Rehabilitation Service
The aim of the Neuro-Oncology Integrated Rehabilitation Service is to ensure that there is a supportive service for improving the experience for people living with and approaching the end of their lives because of neurological cancer.
The expected outcomes of the service are:
- Patients and carers will be more informed about their care and ongoing needs but also where to access support for this outside of the hospital
- Improved pathways for patients with neurological cancer
- Streamlining of referrals
- Improved communication between health care professionals supporting patients with neurological cancer
- Improved communication between patients and health care professionals.
This is a new project and we would like to have the opportunity to feedback progress and gain opinion and ideas. We would like a varied group for this, including patients and/or carers.
Hello my name is Elizabeth Walne, (firstname.lastname@example.org) - I am new in post at Royal Preston Hospital as an Advanced Specialist Practitioner for the late effects of pelvic radiotherapy. I am setting up a late effects service from scratch and I am interested to hear from any patients who have experienced late effects from pelvic radiotherapy (late effects are classed as being present at 6 months onwards after the completion of their radiotherapy treatment).
I am interested to know what their experiences have been in accessing help for their late effects (the good and the bad) and what suggestions they have for what a late effects service should offer. I am especially interested in any gastro-intestinal late effects (as that will be our focus initially) such as; increased frequency of bowel opening, diarrhoea, urgency, incontinence, tenesmus (a feeling of need to open the bowels, but nothing being there), pain in the bottom or rectal bleeding.
Any help you could offer with this would be greatly appreciated, as we are in the very initial phases of service development and having patient feedback is crucial to the successful structuring of the service!